Researchers from University College London are looking for people to take part in the first stage of a study around the impact of PSC on quality of life, for example, on physical or emotional health, social activities, employment or finances, or any other day-to-day issue. They would like to investigate this with people with PSC (including those who have had a liver transplant), either in small group discussions or one-to-one telephone interviews.
This information will be used to develop a PSC-specific questionnaire that may be used to evaluate quality of life in PSC and improve the evaluation of potential new PSC therapies.
More details and what’s involved can be found in the information sheet.
At this stage, the study is open to people who are 18 years or over in the UK with PSC.
If you think you might be interested in taking part or if you would like to discuss the study further, please contact Elena Marcus, the lead researcher, who is based at University College London (UCL), at email@example.com or on 020 7679 9775.