One of the hardest aspects of dealing with PSC is that it is so unpredictable and so different from PSCer to PSCer. We'd love to hear your story, and share it on our website to help others. Perhaps you've just had a procedure, like a colonoscopy, a biopsy or an ERCP. Or maybe you've got a fantastic GP and hepatologist, and you'd like to share some tips on ensuring your care goes smoothly. Maybe your son or daughter has PSC. You might even be a hepatologist!
It is great to access high quality information about PSC, but sometimes, reading about what happens in real life helps even more. Your story could help someone else come to terms with their diagnosis. Your experiences not only help other people understand their condition and care, but also help us advocate more effectively for all PSCers. Every story is important. You might even have no symptoms at all and are living life to the full! We want to know and share every facet of PSC with the medical, PSC and wider community.
If you can write a short summary of your story, do get in touch.
We would love to hear your story
Do you have a Story to Tell
Real life PSC - Patient Insights
Maxine - waiting for a liver (she's now got it)