From his Virgin Giving Page
Around 8 years ago, I was diagnosed with Primary Sclerosing Cholangitis (PSC), this is a rare and poorly understood chronic liver condition, that does not have any successful treatments or a cure. At the time it was a scary diagnosis with little information on this condition available. The fact that there are so many unanswered questions about PSC makes it so much harder to deal with.
A few years ago I started helping the charity with the administration for their website and I found myself learning so much by reading all the articles and content that were available on the site. From that I decided I wanted to dedicate more of my spare time to the charity and I am now one of the trustees.
PSC Support is a UK charity dedicated to helping people affected and is run by a small team of unpaid volunteers. They rely on fundraisers to enable them to continue their amazing and vital work. They also give me so much hope for the future as they provide vital funds into PSC research which means that one day PSC patients will have the treatments and the cure that we so desperately need.
PSCer, James Gosney ran the Brighton Marathon in 2012 for PSC Support, raising over £6,000 for our charity. This year, he's doing it again, running both the Brighton Half- and Full-Marathon!
From his JustGiving page:
"Last year you helped me in raising £6,000 (a large contribution coming from my ACE) for PSC Support research. I now volunteer for PSC Support to help others affected by PSC.
WHAT CAN YOU DO TO HELP?
• Sponsor me through just giving web site or using the text message service
• Think about organ donation and discussing this with your next of kin
• If you live in Brighton, come and support me along the way
• If you are on Facebook, cheer me on using the RunMeter app and I will get them direct through my headphones."
The RunMeter App James uses is great because it speaks to hims as he runs. Each time anyone added a comment to his Facebook Page, it tells him.
“It is great to be running for a charity I know more about and one which has really helped with my understanding of this condition and how to live with it.”
Good luck James!