Your quality of life

PSC Quality of Life Study – Now Recruiting (Stage 2)

Researchers from University College London are looking for people with PSC to take part in the second stage of a research study around the impact of PSC on quality of life. This study involves the development of a PSC-specific questionnaire that may be used to measure quality of life in PSC and to improve the evaluation of potential new PSC therapies.

Thanks to the help of volunteers who took part in stage one, researchers have now put together a provisional version of the questionnaire and are interested in understanding how well it performs. They would like people with PSC to complete the provisional questionnaire and discuss their views about it in a one-to-one interview.

More details and what’s involved can be found in the information sheet.

At this stage, the study is open to people who are 18 years or over in the UK with PSC.

If you think you might be interested in taking part or if you would like to discuss the study further, please contact Elena Marcus, the lead researcher, who is based at University College London (UCL), at or on 020 7679 9775.More details and what’s involved can be found in the information sheet.


Added 23 November 2018


Quality of Life study background information and progress update VIDEO (Jan 2018)