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QoL ECRD 2020

Elena Marcus updates the European Conference on Rare Diseases and Orphan Products about recruitment challenges and the consequences

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PSC Wellbeing Study

After identifying that there was a significant impact on emotional wellbeing when living with PSC, yet a lack of psychological support for both patients and their loved ones, PSC Support commissioned research to address this situation. Publication in BMJ.

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The Colours Theatre Production

The Colours is a play written and produced by Harriet, who received a diagnosis of PSC in 2018. Book your tickets now.

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