We are proud to announce that PSC Support was approved as a full member of EURORDIS on 15 June 2015.
EURORDIS is a non-governmental patient-driven alliance of patient organisations active in the field of rare disease.
EURORDIS' mission is to build a strong pan-European community of patient organisations and people living with rare diseases, to be their voice at the European level, and - directly or indirectly - to fight against the impact of rare diseases on their lives.
Bringing together all patient associations will provide people with rare diseases with a strong and unique voice. With 688 direct member organisations, EURORDIS is recognised and listened to as the European organisation specialised in the needs of patients with rare diseases.