Testimonials
'Thank you. I learned more today than I have in the past 7 years I have had PSC. I wanted to know about PSC research and what my options are for symptoms.'
John: PSC patient, 2018
'Thanks to all involved. Being able to speak with others who 'get ' it has literally changed my whole outlook. '
Fiona: mother of PSC patient, 2016
'I was worried about going because I didn't know anyone, but I drove through the floods and made it to Oxford. My husband said I came back a different person. Everyone was so friendly and I met people who had had liver transplants living full lives. It wasn't what I expected but it was exactly what I needed after being diagnosed earlier that year.'
Martine: PSC patient (from 2007)
'Thank you! Thank you! Thank you!'
Jed: rPSC patient, 2018
We hold two PSC Information Days per year in different locations throughout the UK. Our information days are relaxed and informal and anyone affected by PSC (over the age of 16) is welcome. Each event gives you the opportunity to attend talks and interactive sessions led by PSC experts and people living with PSC. They are also an excellent opportunity to meet and connect with other people affected by PSC. These events are free to attend but you must register to secure a place.
Ask the Expert Q&A Sessions
PSC experts are giving you the opportunity to ask questions about PSC from the comfort of your own home.
The 'Ask the Expert' sessions take place live on Zoom. You don't need to have a Zoom account to take part but you do need to register in advance to join.
What's next?
PSC Variants
What is small-duct PSC and how does it differ from 'just PSC'? What about PSC/AIH Overlap? And what is IgG4-related PSC? Dr Chapman talks us through these variations and answers your questions.
General PSC Q&A
Dr Yeoman, Consultant Hepatologist for the Gwent Liver Unit, answers your questions about PSC. There is no presentation for this Ask the Expert. Just your questions on the day.
Insurance, Mortgages and Finances for People with PSC
Having PSC and dealing with mortgages, insurance and financial planning can be confusing. Pam Brown and her family know all about this as not only do they work as mortgage, protection insurance and finance specialists but Joe Brown, Pam's son, has PSC. Join them in this webinar to find out more and have a chance to ask them your questions.
Note: This webinar will cover these subjects in general terms. No personalised financial advice will be given.
