'Thank you. I learned more today than I have in the past 7 years I have had PSC. I wanted to know about PSC research and what my options are for symptoms.'
John: PSC patient, 2018
'Thanks to all involved. Being able to speak with others who 'get ' it has literally changed my whole outlook. '
Fiona: mother of PSC patient, 2016
'I was worried about going because I didn't know anyone, but I drove through the floods and made it to Oxford. My husband said I came back a different person. Everyone was so friendly and I met people who had had liver transplants living full lives. It wasn't what I expected but it was exactly what I needed after being diagnosed earlier that year.'
Martine: PSC patient (from 2007)
'Thank you! Thank you! Thank you!'
Jed: rPSC patient, 2018
Our information days are relaxed and informal. You have the opportunity to meet others affected by PSC, and watch presentations on PSC by leading PSC authorities, and importantly, ask questions.
We're following COVID-19 news closely. To reduce the risk of infection to patients, their families, and of course, the healthcare professionals who give up their time to speak at our Information Days, we're delaying face-to-face Information Days for now. This too, protects precious charity funds and travel/ accommodation costs to attendees in the event of an unavoidable last minute cancellation. Instead, we're bringing you 'Ask the Expert'!
Ask the Expert
Audience Q&As are always a valuable part of our Information Days. Because face-to-face events are out of the question at the moment, PSC experts are coming to you online.
In a series of live 'Ask the Expert' sessions within our Facebook group, you have the chance to get answers to your PSC-related questions.
We are very grateful to all the experts who give up their time to help us, particularly now, during the COVID-19 pandemic.