Information Days

Learn about the latest PSC news and meet with others affected by PSC

Our information days are relaxed and informal. You have the opportunity to meet others affected by PSC, and watch presentations on PSC by leading PSC authorities, and importantly, ask questions.

We ask that you register for events so that we can send you information about attending and arrange catering for the meetings.



'Thank you. I learned more today than I have in the past 7 years I have had PSC. I wanted to know about PSC research and what my options are for symptoms.'

John: PSC patient, 2018

'Thanks to all involved. Being able to speak with others who 'get ' it has literally changed my whole outlook. '

Fiona: mother of PSC patient, 2016

'I was worried about going because I didn't know anyone, but I drove through the floods and made it to Oxford. My husband said I came back a different person. Everyone was so friendly and I met people who had had liver transplants living full lives. It wasn't what I expected but it was exactly what I needed after being diagnosed earlier that year.'

Martine: PSC patient (from 2007)

Thank you! Thank you! Thank you!

Jed: rPSC patient, 2018

London 2019 Information Day

London Information day

Save the date!

Date: Saturday 23 November 2019

Time: afternoon

Location: Fetal Centre, London

Come to our Information Day to get the latest information and ask questions on PSC care, research and living with PSC.

Birmingham 2019 Information Day

Date: Saturday 22 June 2019

Time: 12:30 to 4:30pm

Location: Queen Elizabeth Hospital, Birmingham

We will publish video recordings of some of the presentations. In the meantime, highlights are here.  Watch this space for the videos!


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