Information Days

Learn about the latest PSC news and meet with others affected by PSC

Our information days are relaxed and informal. You have the opportunity to meet others affected by PSC, and watch presentations on PSC by leading PSC authorities, and importantly, ask questions.

We ask that you register for events so that we can send you information about attending and arrange catering for the meetings.



'Thank you. I learned more today than I have in the past 7 years I have had PSC. I wanted to know about PSC research and what my options are for symptoms.'

John: PSC patient, 2018

'Thanks to all involved. Being able to speak with others who 'get ' it has literally changed my whole outlook. '

Fiona: mother of PSC patient, 2016

'I was worried about going because I didn't know anyone, but I drove through the floods and made it to Oxford. My husband said I came back a different person. Everyone was so friendly and I met people who had had liver transplants living full lives. It wasn't what I expected but it was exactly what I needed after being diagnosed earlier that year.'

Martine: PSC patient (from 2007)

Thank you! Thank you! Thank you!

Jed: rPSC patient, 2018


We're following COVID-19 news closely. To reduce the risk of infection to patients, their families, and of course, the healthcare professionals who give up their time to speak at our Information Days, we're delaying Information Day arrangements for now. This too, protects precious charity funds and travel/ accommodation costs to attendees in the event of an unavoidable last minute cancellation.

In the meantime, we'll be embracing technology to bring you virtual meetings. Watch this space!

PSC Support 11 March 2020


AIH & PSC Patient Information Day 2020

Date: Saturday 01 February 2020

Time: 12:15 - 17:30

Location: Coldra Court Hotel, Newport, Wales

London 2019 Information Day

Date: Saturday 23 November 2019

Time: 12:15 to 17:30

Location: Fetal Medicine Research Institute, London

Birmingham 2019 Information Day

Date: Saturday 22 June 2019

Location: Queen Elizabeth Hospital, Birmingham

London 2018 Information Day

Date: Saturday 01 December 2018

Location: Royal Free Hospital, London


We rely on charitable donations to make our vital work possible

Just diagnosed?

10 things you need to know first about PSC

Live your life

Tips on managing symptoms to managing finances