Our information days are relaxed and informal. You have the opportunity to meet others affected by PSC, and watch presentations on PSC by leading PSC authorities, and importantly, ask questions.
We ask that you register for events so that we can send you information about attending and arrange catering for the meetings.
'Thank you. I learned more today than I have in the past 7 years I have had PSC. I wanted to know about PSC research and what my options are for symptoms.'
John: PSC patient, 2018
'Thanks to all involved. Being able to speak with others who 'get ' it has literally changed my whole outlook. '
Fiona: mother of PSC patient, 2016
'I was worried about going because I didn't know anyone, but I drove through the floods and made it to Oxford. My husband said I came back a different person. Everyone was so friendly and I met people who had had liver transplants living full lives. It wasn't what I expected but it was exactly what I needed after being diagnosed earlier that year.'
Martine: PSC patient (from 2007)
Thank you! Thank you! Thank you!
Jed: rPSC patient, 2018
Wales 2020 Information Day
Save the date!
Date: Saturday 01 February 2020
Location: tbc (Cardiff/Newport area)
Come to our Information Day to get the latest information and ask questions on PSC care, research and living with PSC.
Registration not yet open.
Date: Saturday 23 November 2019
Time: 12:15 to 17:30
Location: Fetal Medicine Research Institute, London
Come to our first joint King's and Royal Free PSC Information Day Information Day to get the latest information and ask questions on PSC care, research and living with PSC.
Registration is now open.