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Louise

Lockdown raffle

My PSC journey began back in September 2016 whilst I was pregnant with my little girl - I was convinced she was a boy! 

Whilst pregnant, I was itchy and they monitored me closely. My liver blood test (ALT) results were so high they decided to induce me a week early. On February 15th 2017, I gave birth to a beautiful, healthy little girl named Heather.

A couple of months later, I began to itch again. The itch was keeping me awake and I felt extremely poorly. My doctor rushed through an appointment for me with the most amazing liver specialist and he believed me to have a rare liver disease called autoimmune hepatitis (AIH). I had a liver biopsy and AIH was confirmed. Over the next two years I felt very poorly. I was in and out of hospital with cholangitis attacks and was struggling to work. I am a primary school teacher and absolutely love my job.

My consultant thought something wasn’t quite right, so he began to consider PSC. Although ERCP is not usually used to diagnose PSC, I had this procedure on the 18th February 2019 which confirmed he was correct.

Following on from this I had a rough year. I was in and out of hospital until they realised my AIH was not being treated. Once they started treating both I began to feel a lot better. Don't get me wrong I'm tired all the time but I get up and I can work one day a week as a primary school teacher. I love my job and I am determined to keep it. My employers have been amazing and extremely supportive.

Throughout all of this I thought there must be a reason why this is happening to me. It was then I decided I needed to raise the profile of PSC. This year I have done a raffle nearly every month for prizes such as afternoon teas and sweetie boxes etc. On PSC Awareness Day I raised just over £700 on a massive raffle in which friends and family supported me and watched on Facebook live. In total, I have raised £1,676 for PSC Support this year. During the Facebook Live draw, I was overwhelmed by the support from my friends and family. I teared up towards the end.

Louise

I have been told I could need a liver transplant at some stage but until then I will continue to be the best wife, mummy and teacher I can be. I will definitely continue to fundraise for PSC Support. Watch out 2021!

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