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London Marathon '21

Team PSC Support

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Our vision is a world without PSC

PSC Support is committed to improving the lives of people affected by PSC - and ultimately, finding a cure. Our fundraisers are helping us make our vision a reality. Meet our marathon runners of 2021. They'll be pounding the streets on Sunday 3 October to help people living with PSC.

We were lucky enough to have one place in the in-person race in London, which we awareded to Greg, and five virtual places, which we awared to Alex, David, Philippa, Rosie and Teresa. Reg (in-person race) and Nikki (virtual race) got their places independently and chose to run for PSC Support. We are so very grateful to you all!

#LetsBeatPSC

Greg

I was diagnosed with PSC in 2020. I've known that I’ve had problems with my liver for the past decade but I was never able to diagnose the issue. Thankfully, an excellent consultant (who I continue to see) identified PSC. I'm now on medication and have also started a clinical trial, so I’m staying positive.

I'm a keen runner and I have applied unsuccessfully to enter the London Marathon on numerous occasions, so I'm delighted that PSC Support has offered me a place to run in October 2021. The charity only has one place and I am fortunate enough to have been given it. I don't want to miss the opportunity to make a difference and raise significant funds for this great charity. The course comes past my house so hopefully my wife and two daughters will be roadside to cheer me on!

Alex

My name is Alex and I was diagnosed with PSC in April this year.

I am partaking in the Virtual London Marathon to help raise awareness for the disease and much needed funds for the charity.

PSC Support is very helpful in providing assistance and information to those suffering with the disease. When I was diagnosed they were a fantastic support providing me with useful information and it was nice to be able to speak with someone about the condition who understood it first hand.

David

I am a 36-year old technology journalist and communications executive. I love running, cooking and Newcastle United. I have only recently been diagnosed with PSC but I'm keen to do everything I can to contribute to research and support the community.

I also run a podcast called 'The Chronically Fit Show' interviewing sports enthusiasts and elite athletes with chronic health issues.

Nikki

I took up running in September 2016 having lost 5 stone in weight. I have completed several half marathons, 5 full marathons and an ultra. This year I applied to run in the London Marathon again and was one of the unlucky ones who did not get a ballot place but after COVID hit and London 2020 got cancelled, London was offering a virtual one. I like to try and raise money for smaller charities each year as these charities tend to be forgotten about.

Having a very close family friend who was diagnosed with PSC in 2012, I knew very little about what he was going through. Now, having had long conversations with him and his wife, regarding how he felt and how he struggles with everyday life with a 3-year-old daughter and a wife who is confined to a wheelchair, I have more understanding of the disease. He is an amazing person that, although tired all the time, goes above and beyond to care for his family. His PSC is advanced, which means he could need a transplant soon. He explained about the fact that there is no known cure at present and research was limited due to lack of money.

I decided that PSC Support needed some extra help to try and find a cure for such a horrible disease and hopefully taking on another big challenge I could raise some much-needed cash and also a little more awareness about PSC.

Philippa

My sister Jenny has PSC and is currently on the waiting list for a liver transplant. In 2020, I went through the assessment process to see if I could be a living liver donor for her. The PSC Support website and social media pages were among the very few places I was able to find information about liver transplant specifically relating to PSC.

I know my sister has also benefited from attending the Information Days and being in touch with others who have been through the same process. I was devastated when I was told I wouldn't be able to give Jenny a piece of my liver, so I'm really happy to have the opportunity to raise money for PSC Support, raise awareness and contribute towards their work.

Rosie

My Dad was diagnosed with PSC when I was 13, now 31 I have grown up with my Dad having this disease and the daily struggles that he may go through. My Dad is amazing and has always worked so hard to ensure me and my 4 sisters have had the opportunities to succeed. Now, as an adult, I understand about the disease and the devastating impact it can have on people.

I am running the virtual London Marathon not only to challenge myself but to raise money for this amazing course and to make as many people aware of this rare disease. Training for a marathon is challenging, mile after mile of running, day after day and it makes me very proud to be training to run it in aid of PSC Support.

Reg

Turns out I’ve had PSC since my total colectomy and reversal 11 years ago but either I wasn’t told or I didn’t listen / want to hear it! I am simply enjoying everyday as it comes and continue to be…me🥰which as everyone knows, is great!

I have a positive outlook, as always. I beat Ulcerative Colitis and I’ll beat this, it’s just another disease to tick off on the bucket list 😜I am running the marathon as it’s something I’ve always wanted to do and as I’m in my twilight rugby years…figured it was good time.

We soooo have this 💪🏼

Teresa

Hi! My name is Teresa Brevini and I am a scientist from Milan (Italy), where I studied Medical Biotechnology. I have always been passionate about translating new scientific discoveries into tangible medical solutions, hoping one day to be able to make a difference for the lives of others. I am currently doing a PhD at the University of Cambridge (UK) in the laboratory of Dr Fotios Sampaziotis, where we study bile duct cells (cholangiocytes) trying to find alternative therapeutic options for disorders of the biliary tree, such as PSC:

Before starting my PhD, I was not aware of the burden of cholangiopathies and how little we still understand these diseases. My research gave me the opportunity to work side-by-side with clinicians and offered me a window to understand how difficult it is to live with a chronic disease like PSC but also the tenacity that arises from it and how much help organisations such as PSC Support UK provide. For these reasons, I decided I want to give my contribution beyond my work in the lab.

Doing research is very much like running a marathon, the finish line seems very far away but if you set one foot in front of the other and not give up, ultimately you will get there. This is why I decided to run the London Virgin Marathon for PSC Support UK. Since this year the marathon is going to be virtual, I chose my stage to be Addenbrooke’s hospital in Cambridge where I work, because this is the place where research is translated into new therapies to improve the lives of people, and this is ultimately what we fight for.

On the 3rd of October 2021 I will run the marathon in laps around Addenbrooke’s hospital and my finish line will be in front of the Wellcome-MRC Cambridge Stem Cell Institute where our laboratory is. I would love it if you could join me, even if only to share 3 miles together. I will send updates on my Twitter page @BreviniTeresa.

On the day before the marathon (3pm on Saturday 2nd of October 2021), Dr Sampaziotis and Teresa Brevini will be discussing their research and what they do in the lab in a virtual event followed by a Q&A session. Join Saturday's Ask the Expert in PSC Support's Facebook group to learn more about how they are planning to beat cholangiopathies. More details to follow!

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