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Our latest updates

Birmingham 2019 Information Day

23 April 2019
Registrations now open

Quality of life for people with PSC

23 March 2019
Please help us ensure PSC patients are being asked the right questions to assess quality of life

We're educating liver nurses about PSC

22 March 2019
PSC Support at the British Liver Nurses' Association conference

PSC research is a top priority in the UK liver community

11 March 2019
Your survey responses have been acted upon and heard

Your Medicines Supply After the EU Exit

5 March 2019
What to expect in the event of a no-deal EU Exit and and what to do now

Using cannabis to control pain in PSC

5 March 2019
The facts about medicinal cannabis and where to find more information

Rare Disease Day 2019

28 February 2019
Raising awareness online and on radio

UK Strategy for Rare Diseases

27 February 2019
PSC Support calls for a review of the UK Strategy for Rare Diseases

Opt-out organ donation system approved

26 February 2019
Organ donation law is changing in Scotland and England

Help to get active after transplant

22 February 2019
A new online programme from the World Transplant Games Federation was launched today to improve fitness, nutrition, wellbeing and quality of life.

UK liver patient community is pulling together

5 February 2019
​The Liver Patients’ Transplant Consortium (LPTC) met today for the benefit of liver transplant patients

PSC Support works with researchers to improve PSC diagnosis

1 February 2019
We are working with researchers to remove the uncertainty around diagnosing PSC

Deemed consent one step closer

1 February 2019
An opt-out system for organ donation could soon become law

Rare liver diseases across Europe

31 January 2019
PSC Support attended the ERN annual meeting to represent patients on behalf of the EASL Policy and Public Health Committee

Game changer for liver transplantation

18 January 2019
Use of machine perfusion machines approved by NICE

UK-PSC Risk Scores for PSC

3 January 2019
A new 2 year and 10 year UK-PSC risk score tool for PSC

A new chapter in the work of PSC Support

17 December 2018
Our first employee!

Martine Walmsley joins the EASL Policy and Public Health Committee

5 December 2018
PSC Support Chair of Trustees joins the European Association for the Study of the Liver (EASL)'s new committee

Research of medicine for PSC

3 December 2018
PSC Support represents patients at EMA meeting on development of medicines for PSC

Impact of PSC on mental health and wellbeing

25 November 2018
We're working with psychologists to improve wellbeing for people affected by PSC
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