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Our latest updates

What are PSC patients thinking?

15 November 2018
Find out what patients think about having PSC and their attitudes to research and treatments

Results from NGM282 drug trial in PSC

11 November 2018
Results of another drug trial for PSC have now been published following preliminary results announced last year

Results GS-9674 drug trial in PSC

10 November 2018
GS-9674 led to significant improvements in liver biochemistry and markers of cholestasis in PSC patients

PSC Support Research Funding Grants

30 October 2018
The latest PSC Support grant round closes on 9 January 2019

A Support Trustee for PSC Support

25 October 2018
Karen Rockell joins our Board of Trustees

Raise awareness of PSC

20 October 2018
Raising awareness of PSC helps us to fund more PSC research and influence research priorities and improve services.

Impact of No-Deal BREXIT on PSC patients

15 October 2018
A no-deal BREXIT impacts medicine, care, research and access to treatment for PSC patients

A prediction tool for doctors

8 October 2018
Predicting risk in PSC: PREsTo

A Digital Trustee for PSC Support

10 September 2018
Gary Taylor joins our Board of Trustees

Opt Out System for Organ and Tissue Donation in England and a new NHS App

5 August 2018
Consultation response and Government plans to introduce a new opt out system for organ donation in England from spring 2020.

Patient involvement in clinical services and research

20 June 2018
Wales Hepatology Forum presentation about involving patients

The impact of colectomy type following liver transplant for PSC

12 June 2018
Colectomies and PSC transplant: end ileostomy compared to ileal-pouch anal anastomosis (IPAA).

National Liver Offering Scheme Introduced

19 March 2018
A new system has been introduced to allocate livers to patients on the liver transplant waiting list.

PSC Support is now a Charitable Incorporated Organisation

28 February 2018
Major constitutional change for PSC Support

Research begins looking at IBD care after transplant for PSC

25 January 2018
First nationwide audit of IBD care delivery following liver transplantation for PSC

New guidelines for management of liver blood tests

19 December 2017
New British Society of Gastroenterology (BSG) Guidelines have now been published...

PSC and the role of the clinical nurse specialist

1 December 2017
Co-authored by PSC Support, an article about the role of inflammatory bowel disease (IBD) nurses was published...

PSC Support responds to EMA consultation on behalf of patients

14 August 2017
The European Medicines Agency is evaluating clinical trial design in PSC

PSC Support joins PSC Forum

19 June 2017
The PSC Forum launches to accelerate PSC research

Update on PSC from Dr Roger Chapman

31 May 2017
An Open Access publication on PSC and an interview with Dr Chapman
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