Liver biopsy - what PSCers say
"My biopsy was carried out by a very nervous student - I am assuming it was her first. The consultant was talking her through it, but to be honest, it felt like she was swinging a fishing rod in there! The consultant kept shouting at her to "shoot", but it felt like forever before she actually fired and took the sample. The whole procedure was very painful and distressing, and I dread the day I need another! I wont be ticking the 'I dont mind if a student mutilates me' box anytime soon ;-)"
"I had an interesting biopsy before being diagnosed. I had the junior doctor who marked an x on y skin where they thought they should do it, then another doctor came in and said that wasnt right and another x, then the third came in and told them they were both wrong !!by this time I was wondering whether we should get a 4th in just to be sure!! Strangely enough they didnt find anything and wasnt diagnosed with PSC for another 2 years!!"
"I've had two biopsies and both were carried out by very skilled doctors (that what I was told anyway!) Both times they went in through the side. The area was numbed first and the doctor uses an ultrasound to guide. The procedure is very quick itself, it feels like a sharp jab in the ribs. You have to lie on your right side for 3 hrs after which is a little uncomfortable as obviously that's the side that's tender. However, you get to go home after that and are fit for normal activities again the next day. I was tender for a few days and just took some paracetamol. I've never had a colonoscopy, to me that sounds far worse than a liver biopsy. Fear of the unknown I guess! It wouldn't worry me if I had to have another biopsy as long as I trusted the doctor carrying it out."
"Had a liver bioposy, 2 technicians set up the ultrascan, I asked if I could see what was happening on the screen, so they set that up for me to see. Then someone, who didn't introduce herself and I could not see her as I had my back to her and I had been told not to move, swept in, asked me why I was there having al liver biopsy as I looked healthy, She then did the proceedure, with me watching on the screen,it looked as if it was happening to someone else as it didn't hurt, the only sensation was when she inserted the probe and that didn't really hurt. Interesting to see my liver cells being slurped up. Then lay on my side for 3 hours, (slept most of the time), then went home. No problems."
"I've had 2 biopsies both done by consultant radiologists (though at diff hospitals) and both ultrasound guided. They were both very good. I had local anaesthetic which was like a bee sting then slight discomfort when they actually took the biopsy but bad right shoulder pain which needed pain killers. I had to stay in 6hrs post procedure, lying on side for 3hrs, and given paracetamol for shoulder pain. All in all it wasn't that bad a procedure although I did have a vasovagal after the first one and ended up with a cannula and iv fluids."