News Archive November 2017

17 Nov 2017
PSC Support calendar

'Naturescapes' wall calendar - 15% proceeds to PSC Support


Thank you to PSCer Leanie Evans and her talented husband for raising funds and awareness for PSC Support by selling these stunning calendars in aid of PSC Support.

Evanscapes Photography are donating 15% of the proceeds from sales of their 2018 'Naturescapes' wall calendar to PSC Support. They cost £15.95 including postage. We've had a sneak peak and the photographs are stunning. If you want to start getting organised for 2018, why not get a beautiful calendar and help PSC Support at the same time?

15 Nov 2017

We are delighted that Jenny Pedre is making hand made Christmas cards once again for PSC Support. You can see the four designs below, which she is selling for £1 each + postage. The scans here don't do her cards justice.

Jenny says, "Please remember that the cards are all home made, and no two are exactly the same! The cards cost £1 each as before, and I would appreciate a contribution to the postage - if you place an order I can quote you the postage cost."

15 Nov 2017

ClinicalTrials.gov Identifier: NCT03337074

This study is investigating whether cholestatic liver diseases such as PSC can impact the structure and function of sperm. This is important because changes to the sperm can affect the health of the children conceived from those sperm. In this study, the health of 16 – 25 year-old children of fathers with cholestatic liver diseases such as PSC is also being investigated.

15 Nov 2017

The BUTEO trial is open to patients who are 18 years or over with PSC. The trial is investigating the use of BTT1023 to see if it can be given safely to patients with PSC and whether it reduces inflammation and scarring. BTT1023 is an antibody against a protein found in the liver (see clinicaltrials.gov). Blood tests and scans will be performed to see if the drug is working.

13 Nov 2017

Researchers from University College London are looking for people to take part in the first stage of a study around the impact of PSC on quality of life, for example, on physical or emotional health, social activities, employment or finances, or any other day-to-day issue. They would like to investigate this with people with PSC (including those who have had a liver transplant), either in small group discussions or one-to-one telephone interviews.