Take part: The PSC Wellbeing Study
You can take part in this important study from today (31 August 2018).
Researchers at the Tavistock & Portman NHS Foundation Trust are investigating the impact of PSC on mental health and wellbeing with the aim of developing a framework that will help people affected by PSC get the psychological support they need.
There is currently very little research evidence that shows how a PSC diagnosis impacts on the mental health and wellbeing of a person, and their partners and families. However, PSC Support has identified that there is a significant impact on emotional wellbeing when living with PSC yet a lack of psychological support for both patients and their families and loved ones. This research study aims to investigate that impact and develop a Personalised Psychological Intervention framework for PSC.