Don't miss important news
Sign up for a digest of the most important news every month.
Latest News
A look at our recent visit to Belfast for the BASL conference and Information Day
The 29th of October 2025, marks Global PSC Awareness Day, a day that unites patients, families, clinicians, and researchers around the world to shine a light on PSC.
This year’s theme, “Turning Hope into Action,” is about more than optimism, it’s about progress. Every day, people affected by PSC, along with the medical and research community, are taking steps toward finding effective treatments and, ultimately, a cure.
People with long-term health conditions urged to stay strong and get vaccinated this winter to protect themselves from flu
Liver Transplantation for Bile Duct Cancer From this month, liver transplantation will be available to a small proportion of people who are diagnosed with bile duct cancer. The medical term for bile duct cancer is cholangiocarcinoma, or CCA for short. Even though the risk is low, the risk of developing CCA is higher for someone…
October is Free Wills Month – an opportunity to write or update a simple will for free. There’s no obligation to leave a gift, but any legacy you choose to leave helps PSC Support continue providing vital support, information, and research.
We’re working with researchers to develop tools to measure symptoms and quality of life in PSC.
Share your experiences living with PSC. This important research aims to better understand the symptoms of PSC and how they affect daily life, including social, emotional, and financial impacts. By sharing your experiences, you can help improve knowledge about what it’s really like to live with PSC.
PSC Support welcomes the Review and strongly agrees that changes to the NLOS are required in order to ensure equity, access and transparency for patients. We endorse those recommendations which seek to address the disadvantage that PSC patients face under the NLOS.
Over the past year, NHS Blood and Transplant has been reviewing how deceased donor livers are offered to people needing a liver transplant. Patients, families, and professionals have all shared their views. NHSBT invites you to attend an online webinar to hear the proposals and give your feedback.