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Jenny & Sophie: Loom Bands, Cakes & Community for Rare Disease Day

02/04/2026

To mark Rare Disease Day, Jenny stood up in front of her local church to share her personal experience of living with PSC. Her daughter Sophie was on hand selling and making bespoke loom band bracelets and key chains after being inspired by Liyana.

March 2026 Research Roundup

02/04/2026

A summary of recent clinical trial results, new research funding, and a historic NICE evaluation.

Ritivixibat (A3907) Phase 2 Clinical Trial Results

01/04/2026

Safety results for the Phase 2 ritivixibat study (A3907) for PSC have been released.

PSC and GLP-1 Medication for Weight Loss

01/04/2026

Exploring the role of GLP-1 medications and what the latest research means for our community.

PiSCATIN study reaches full recruitment milestone

23/03/2026

The PiSCATIN study has enrolled 570 participants, moving us closer to potential PSC treatments.

Volunteer Trustees Wanted

10/03/2026

Apply to be a Trustee for PSC Support and use your knowledge and skills to help the charity meet the needs of people affected by PSC.

PSC Support Signs Landmark European Declaration to Accelerate Rare Disease Innovation

02/03/2026

PSC Support joins European leaders to advocate for a cohesive ecosystem in rare disease care.

February 2026 Research Roundup

28/02/2026

A month of leadership growth, breakthrough research, and new milestones in clinical care.

Rare Disease Day 2026

27/02/2026

From a ‘black box’ to a global movement: how we’re accelerating PSC research.

Help Researchers Understand the Impact of Acute Cholangitis

26/02/2026

Help researchers understand ‘PSC flares’ by sharing your symptoms in our global survey.