PSC Support is committed to involving people with PSC in research - after all, they are the experts!
Improve recruitment and retention
We want to help researchers improve recruitment and retention of participants in studies and help develop study protocols with patient-centred planning.
Our patient panels provide valuable input in all aspects of research, including:
- identifying patient priorities in research
- supporting research funding applications
- developing research protocols and patient information sheets
- helping recruit patients
- disseminating findings
We're connected to thousands of patients
If you are considering or planning a PSC research study, or have some research results to share, let us know. PSC Support connects to thousands of people affected by PSC, who are keen to get involved and keep up-to-date.
We can help you form your own patient panels to feed into your research.