Everyone with fatigue wants to know how to best live with it. Here’s some tips that may help you manage fatigue if you have it:

  • Eat little and often - eating healthy snacks and keeping hydrated may improve your energy levels.
  • Plan rest time - if you have a busy day or activity ahead, plan some rest time afterwards. 
  • Take advantage of short cuts - there are lots of things you can do to make your life easier such as online shopping or cooking extra food and freezing it, so you have effort-free meals waiting in your freezer. 
  • Keep active - it’s probably the last thing you feel like doing, but gentle exercise can help with energy levels for some people. 
  • Don’t feel guilty about resting! Some people feel guilty about needing to rest. Fatigue is invisible so don’t assume family and friends automatically know how tired you are. Talk to them and explain how you’re feeling.
  • Schedule your day appropriately - look at when you feel the most tired. Often it is in the afternoon/ evening. Sometimes you may require shorter shifts at work, and also erratic shift work can play havoc with fatigue in PSC. If needed, your GP or PSC doctor can write a letter to your employer about the impact of your condition causing fatigue and recommend set/ altered hours.

What does fatigue feel like?

What people with PSC say about fatigue

Some people also describe 'brain fog' when talking about PSC. Here's what they say:

What people say about brain fog

Quality information: this information has been reviewed by a panel (Q1) of patients and experts.
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