Did you know only 7 people per million are diagnosed with the rare liver disease, PSC, each year?

We created this #RareReality card thanks to Rare Disease UK. The PSC community has been sharing it around the world! 

Thank you to the hundreds of people who've shared and helped raise awareness of PSC!

Share our graphic about PSC


On the air!

BBC Radio Northampton interviewed PSC Support Trustee, Karen Rockell about her four rare diseases this morning. She was up and at 'em early talk about living with a rare disease (four in Karen's case), coping with invisible disease, accessing expert care and her experience of participating in the Transplant Games.

Listen from 2:43:43 to 2:49:50 (available until 28 March 2019)

Great interview! Thanks Karen!

More facts about PSC

Categories: Representing Patients
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