PSC research is a top priority in the UK liver community

11 March 2019
Your survey responses have been acted upon and heard

Rare Disease Day 2019

28 February 2019
Raising awareness online and on radio

UK Strategy for Rare Diseases

27 February 2019
PSC Support calls for a review of the UK Strategy for Rare Diseases

Opt-out organ donation system approved

26 February 2019
Organ donation law is changing in Scotland and England

UK liver patient community is pulling together

5 February 2019
​The Liver Patients’ Transplant Consortium (LPTC) met today for the benefit of liver transplant patients

Rare liver diseases across Europe

31 January 2019
PSC Support attended the ERN annual meeting to represent patients on behalf of the EASL Policy and Public Health Committee

Research of medicine for PSC

3 December 2018
PSC Support represents patients at EMA meeting on development of medicines for PSC

What are PSC patients thinking?

15 November 2018
Find out what patients think about having PSC and their attitudes to research and treatments

Impact of No-Deal BREXIT on PSC patients

15 October 2018
A no-deal BREXIT impacts medicine, care, research and access to treatment for PSC patients

Patient involvement in clinical services and research

20 June 2018
Wales Hepatology Forum presentation about involving patients

PSC Support responds to EMA consultation on behalf of patients

14 August 2017
The European Medicines Agency is evaluating clinical trial design in PSC

PSC Support joins PSC Forum

19 June 2017
The PSC Forum launches to accelerate PSC research

PSC Support Presents Patient Perspective to Regulatory and Research Authorities

3 March 2016
Accelerating PSC research and raising the bar

PSC Support Response to Liver Offering Scheme Proposals

11 March 2015

Response by Martine Walmsley, PSC Support, 11 March 2015:

A Holistic Approach to Liver Health: Our Voice is Heard

20 December 2012
Chief Medical Officer acknowledges multiple causes of liver disease and need to reduce stigma

Call for a Holistic Approach in Addressing Burden of Liver Disease

26 November 2012
PSC Support writes to Chief Medical Officer
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