You are responsible for your prescriptions. Ensure that you understand why you are taking the medication prescribed to you. If you are unsure, ask your hepatologist, liver specialist nurse, GP or Practice Nurse to explain.
Order your medications well in advance – some GP practices take 24-48 hours to turn around prescription requests.
Scotland, Wales and Northern Ireland provide free prescriptions to everyone while England does not. Prescription charges will increase to £8.40 in England on April 1st 2016.
If you pay for your prescriptions, check with your pharmacist if you are entitled to any benefits or consider a prescription prepayment certificate. For more information about UK precription charges and exemptions, the Boots website is very helpful.
If you have to pay for your prescriptions, you can save money by buying a PPC. It is worth it if you need to pay for more than 4 prescription items in three months or 14 prescription items in twelve months. You can only buy a PPC for your own prescriptions.
The annual Prescription Prepayment Certificate (PPC) has been frozen at £104 and the 3 month PPC at £29.10.
For more information, visit the NHS website.
People with Primary Sclerosing Cholangitis (PSC) are suffering from a long term liver condition. Furthermore, over 70% of people with PSC also suffer from Inflammatory Bowel Disease (IBD) and/or another immune-medicated disease. Like others with long-term conditions, PSCers must pay for their prescriptions, often needing multiple medications at once. Prescription charges impose costs on people with chronic conditions for the medicine that keeps them well or even alive, not to mention the additional costs if their illnesses flare-up. The Prescription Charges Coalition campaigns to end unfair prescription charges for people with long-term medical conditions like PSC and IBD.
News: PSC Support joins the Prescription Charges Coalition (February 2014)
News: Pharmacists to police exempt prescriptions (Jan 2015)
It can be frustrating when our GP calls us in for a prescription review every six months when we expect to be on our medication for life. However, your GP is just doing their job and must check that the dosage and medication is correct for diagnostic and prescribing purposes. Cost and waste are huge issues. Some PSCers arrange to have their prescription review over the phone rather than take time with an appointment. It is a great opportunity to update your GP on any PSC-related issues.
Experiencing Ursodeoxycholic Acid Prescriptions Problems?
We've been hearing from some PSCers that their pharmacists are experiencing availability issues when fulfilling Ursodeoxycholic acid prescriptions. We have been in contact with Dr Falk Pharma Limited, who are a manufacturer of Urso. They report that there are no current manufacturing or distribution issues at this time (November 2014). Read more