The PSC Wellbeing Study

Awarded to the Tavistock & Portman NHS Foundation Trust

Dr Veronica Ranieri, Research and Development, The Tavistock and Portman Trust

The total grant awarded is £40,000

Duration of award: July 2018 to November 2020

Award details: Creating a Personalised Psychological Intervention for Primary Sclerosing Cholangitis: Understanding mental health and wellbeing among people with PSC.

Summary

Researchers at the Tavistock & Portman NHS Foundation Trust are investigating the impact of PSC on mental health and wellbeing with the aim of developing a framework that will help people affected by PSC get the psychological support they need.

There is currently very little research evidence that shows how a PSC diagnosis impacts on the mental health and wellbeing of a person, and their partners and families. However, PSC Support has identified that there is a significant impact on emotional wellbeing when living with PSC yet a lack of psychological support for both patients and their families and loved ones. This research study aims to investigate that impact and develop a Personalised Psychological Intervention framework for PSC.

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