If your mind goes blank as soon as you start your appointment with your doctor, you're not alone.
Researchers have developed a set of questions and prompts that can be used to improve communication in appointments138. Appointments are short and it can be challenging to talk about the things that are important to you as well as everything the doctor needs to discuss. The researchers worked with liver disease patients from across the UK and staff at the Royal Free Hospital in London (hepatology and palliative care departments) to identify the most important questions to patients. They then created a 'Question Prompt List' which is currently being used by the Royal Free Hospital (copy below).
PSC Support started helping with this research back in 2016 and some of you may recall giving your opinions at that time. As usual, a massive thank you to those of you who got involved.
We think this question list is great! Do also check out our PSC-specific questions for your doctor in our Working with Your Doctor section:
The Question Prompt List
View the prompts by clicking the images below or download the pdf to print out:
You can read the full research paper here.