Take part in research

How you can be involved in finding a cure for PSC through research

There has never been a more exciting time in the history of PSC research. There may be studies taking place in your own hospital, national and international studies through UKPSC, or qualitative studies looking at the psychological burden of PSC and how patients can be better supported.

Taking part in research can range from filling in a short questionnaire, giving blood or another sample, giving extra biopsies during your colonoscopy, to trying out a drug that is being developed for PSC. We can't stress enough how important your effort to help is: PSC is rare and as many of us as possible need to be part of the movement to find a treatment that works, once and for all.

Together, we can make a difference. How will you help?


In this section:

Give a blood sample

Give A Blood Sample

Anyone with PSC (including children) in the UK can give a blood sample to UK-PSC.

Read More
Find PSC research studies

Find PSC Research Studies

There are all kinds of PSC research studies to take part in. Find studies in the UK and worldwide.

Read More

Our 'Research' and 'Medicine and Treatment' News

Dr Jess Dyson: What’s New in Autoimmune Liver Disease

14 Sep 2019

Consultant hepatologist Dr Jess Dyson, member of PSC Support’s Expert Panel, talks about her research interest in why people get autoimmune liver diseases at a recent LIVErNORTH patient meeting, focusing on possible environmental factors.

Read More

Faecal Microbiota Transplant and Vancomycin for PSC

13 Sep 2019

Take two minutes to do our quick poll about the best way to conduct a faecal microbiota transplant and vancomycin study. THANK YOU!

Read More

Supercool Livers

13 Sep 2019

A new method for liver transplants from Harvard scientists.

Read More

Testing the Utility of MRCP+

12 Sep 2019

New study is looking at a new technology that could aid PSC diagnosis and how progression of disease is measured.

Read More

A World Without PSC campaign

13 Aug 2019

Help us beat PSC!

Read More

PSC Support 2019 Research Survey

26 Jul 2019

Take part in our new survey to understand why people do, and don’t, take part in research, and enter our £50 Amazon voucher prize draw.

Read More

PSC Support is working with the UK Regulatory Authority for Medicine Development

22 Jul 2019

PSC Support is a member of the Patient Group Consultative Forum (PGCF) to bring the PSC patient voice to the work of the MHRA.

Read More

Yellow Card Scheme

22 Jul 2019

How to report side effects of medicines and how to create a ‘watch list’ of medications for which you can receive news and alerts.

Read More

Special Interest Group for Immune-Mediated Liver Disease

11 Jul 2019

PSC research priorities presented at the BASL Immune-Mediated Liver Disease Special Interest Group.

Read More

Birmingham Information Day June 2019

01 Jul 2019

PSC Support held their 2019 Birmingham Information Day on the 22nd June at the Queen Elizabeth Hospital.

Read More

Taking Part in Research

28 Jun 2019

New website launched focusing on clinical trials and taking part in research

Read More

Medicine Development Training

16 Jun 2019

This week, Maxine, PSC Support’s Programme Development Officer, has been extending her knowledge in this area with EURORDIS, the European patient organisation for rare diseases.

Read More

Cancer Prevention Survey Results

12 Jun 2019

Survey results published: reducing the risk of cancer is important to people affected by PSC and they are interested in helping reduce the risks of PSC-related cancers.

Read More

Taking Part in Research – Patient Perspective

09 Jun 2019

How do you get on a clinical trial for PSC? What’s involved? Gareth shares his experience.

Read More

Vancomycin: a promising option for the treatment of PSC?

07 Jun 2019

Dr Roger Chapman takes a look at vancomycin and its potential use in PSC.

Read More

PSC Guidelines

03 Jun 2019

The new BSGUK-PSC Guidelines for the diagnosis and management of PSC have been published.

Read More

PSC Research VIDEO

17 May 2019

Dr Douglas Thorburn from the Royal Free Hospital London talking about the latest PSC research.

Read More

What to expect from your PSC doctor VIDEO

17 May 2019

Dr Aileen Marshall from the Royal Free Hospital London talking about what to expect from your PSC doctor.

Read More

Quality of life for people with PSC

23 Mar 2019

Please help us ensure PSC patients are being asked the right questions to assess quality of life.

Read More

PSC research is a top priority in the UK liver community

11 Mar 2019

Your survey responses have been acted upon and heard.

Read More

Using cannabis to control pain in PSC

05 Mar 2019

The facts about medicinal cannabis and where to find more information.

Read More

Your Medicines Supply After the EU Exit

05 Mar 2019

What to expect in the event of a no-deal EU Exit and and what to do now.

Read More

PSC Support works with researchers to improve PSC diagnosis

01 Feb 2019

We are working with researchers to remove the uncertainty around diagnosing PSC.

Read More

UK-PSC Risk Scores for PSC

03 Jan 2019

A new 2 year and 10 year UK-PSC risk score tool for PSC.

Read More

Research of medicine for PSC

03 Dec 2018

PSC Support represents patients at EMA meeting on development of medicines for PSC

Read More