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Patient Association COVID-19 Toolkit f

COVID-19 Patient Organisation Toolkit

15 July 2020

A communications toolkit for rare liver patient organisations.

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Ask the Expert Liver Transplant Patient Experience

Ask the Expert 6 – Liver Transplant Patient Experience

13 July 2020

This special Ask The Expert session saw patients and family members talking about liver transplant for PSC.

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COVID Lay summary

Care of Patients with Liver Disease during the COVID-19 Pandemic

09 July 2020

Care of liver disease patients during COVID-19 – summary of guidance for healthcare professionals (written by PSC Support and EASL).

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PSC Wellbeing Study

The PSC Wellbeing Study Update

07 July 2020

Researchers have today published an article based on learning from research funded by PSC Support called the PSC Wellbeing Project.

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Ask the Expert Dr Palak Trivedi 2

Ask the Expert 5 – Dr Palak Trivedi is back!

26 June 2020

UPDATED WITH VIDEO! Dr Palak Trivedi answering questions in our Ask the Expert Q&A session this week.

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Logo ERN-rareliver

COVID-19 Survey

26 June 2020

Please can you answer a few questions about COVID-19 so we can better evidence the risks to patients?

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Newsletter survey web

How Would You Like Your News?

24 June 2020

Please take 2-3 minutes to tell us how we can improve the news we share with you.

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Current update COVID-19 and PSC

Shielding Update for England

22 June 2020

Shielding update for England

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Machine perfusion

Liver Perfusion Could Save 7 in 10 Rejected Donor Livers

17 June 2020

New research from the University of Birmingham reveals results of clinical trial about machine perfusion technology.

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Ask the Expert Andrew Yeoman

Ask the Expert 4 – Dr Andrew Yeoman Returns

15 June 2020

Dr Andrew Yeoman joins us again on Thursday 18th May at 5pm (UK).

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