The PSC Support Helpline is for anyone aged 18 or over affected by PSC. It might be you, or it might be a close relative or partner. We are here to support you.

If you've just been diagnosed, please book a call or email us. We can help you make sense of your diagnosis. If you've Googled PSC, we will help explain some of the information you may have read about the condition. You are not alone.

A trained PSC Support volunteer will contact you to give you confidential, emotional support and information about PSC.

The call will come from a witheld number.

Yes, except in certain situations where we consider you or another person to be in immediate danger (and you have given us contact details).

Your details will be used for the purpose of providing you with support and information by phone or email, and will not be stored for any longer than is necessary.

We may make notes about the type of support or information provided to you by phone and how long the phone call lasted for. These notes will not identify you personally, and are only used for monitoring and reporting purposes.

Who will see my personal information?

When you contact us, you will be called or emailed by a trained volunteer. They are not medically qualified, and so they will not give medical advice but they do have experience of living with PSC. They will be able to see your email address, name, and the details of your enquiry if you have emailed us; and the name you have provided in your booking form, phone number, email address and preferred call back time if you've made an appointment for a helpline call.

Any information you provide about your health is a special category of personal information, and we rely on your consent to use it to provide you with appropriate support. When you book an appointment (below), you can give your specific consent by ticking the box.

For more information about how we will look after your personal data, please take a look at our Privacy Policy.

See Privacy Policy

If we call you at the appointed time and you do not answer, we will simply leave a name and not state that the caller is from PSC Support.

No, we will not charge you for using our service. If you call us, your usual calling charges apply.

If you're booking an appointment with us, we need your email address to confirm the date and time of your Helpline booking, and your phone number to call you for your appointment.

If you're sending us a message, we need your email address to reply to you.

No, if you prefer not to disclose your real name, feel free to make one up. We don't check up on it and we'll never know.

We get it. It can be hard to find a time especially if you are working or have younger children. We want to help. If you need a different time slot, please send us a message stating when you would prefer to be contacted, and we'll do our best to book your call at a time that works for you.

We have 30 minute slots available to book. If you need longer than that, then the volunteer will remain on the call to speak with you if there isn't another call booked. If there is, we will fit you in for another slot as soon as possible.

PSC Support offers calls like this to make the best use of charity time and funds.

After your helpline call, we will email you to ask for your anonymous feedback about your experience of our service.

If you have received email support, a link to ask you for feedback will be included in the email footer.

We hope that you will take a few moments to give us feedback as it helps us to ensure that we are offering a service that best fits your needs, as well as assisting to secure future funding for the service.