Skip to content

Working to end PSC

We're here to help anyone affected by PSC and to drive PSC research towards a cure

PSC Support is the leading organisation for anyone affected by primary sclerosing cholangitis (PSC)

PSC is a rare, immune-mediated liver disease that can affect anyone, at any age. PSC is complex and current evidence suggests that people with a genetic makeup may be susceptible to some sort of (as yet unknown) environmental trigger, which causes their immune system to effectively 'attack' the bile ducts.

We're here for you

Take control

Understand your medical care and what to expect

Find clinical trials

Take part in cutting edge research to help find a cure for PSC

COVID-19 and PSC

Get the latest information for you and your doctors

Get support

You don't need to face PSC alone

Get the PSC Alert Card

Emergency cholangitis information

Our vision is to see a world without PSC

 

We provide patients and families with high-quality, accessible information and the support they need; we collaborate with healthcare providers to improve clinical care; we shape and fund critical research so that we can live in a world without PSC.

PSC News

Beat Flu logo from NHS Wales

Free Flu Vaccine Available for More People

23/09/2020

It’s the season for flu vaccinations and members of households where someone was shielding are eligible to receive it.

Ask-the-Expert: Dr Joshi

Ask the Expert: Dr Deepak Joshi

15/09/2020

We’re back with another Ask the Expert Live Q&A session. This time we’ll be joined by Dr Deepak Joshi.

Organ Donation Week 2020

07/09/2020

Make your organ donation decision and encourage others to do the same this Organ Donation Week.

Blood test ALP ELF

ALP and the ELF Score in Clinical Trials

28/08/2020

Research: ALP and the ELF score in PSC Clinical Trials

📣Today more than always very important to promote cancer research in a world collaborative basis! #WorldCancerResearchDay 🧪🧫🔬Many thanks to all the Institutions supporting it 👏: @Biodonostia @CcaEns @EASLedu @curecc @CharityAMMF @aeccgipuzkoa @PSCSupportUK @PSCPartners etc.

Instead of discussing statistics and probabilities with #patients, @hudsonbe81 suggests we could discuss:
*best case
*worst case
*most likely situation
using visual scales of severity
#BASL2020

Calling #TransplantTwitter. We’re jointly launching a #survey on the effects of #COVID19 on #liver #transplantation worldwide. https://easl.eu/news/transplant-centres-survey/ All #transplant centres are urged to take part! Deadline: 2 Oct 2020. @ESOTtransplant @ELITA_ELTR @_ILTS_ @EASLedu

Perhaps the single most important study in paediatric psc this year

@PSCSupportUK @PSCPartners @PSCPartnersCa @AutoImmuneLiver @DrAliyaMD @jfergus75 @tomhemmingk @dougton @MichaelHenegha8 @djosh78

https://pubmed.ncbi.nlm.nih.gov/32946600/