Working to end PSC

We're here to help anyone affected by PSC and to drive PSC research towards a cure

PSC Support is the leading UK-based organisation for anyone affected by primary sclerosing cholangitis (PSC). We’re here to help, whether you are a patient, family member, healthcare provider or researcher.

 

PSC is a rare, immune-mediated liver disease that can affect anyone, at any age. PSC is complex and current evidence suggests that people with a genetic makeup may be susceptible to some sort of (as yet unknown) environmental trigger, which causes their immune system to effectively 'attack' the bile ducts.

 

PSC Support is working to improve the lives of people affected by PSC by providing support and information, campaigning to improve the care we receive, and funding critical research to find effective PSC treatments.

font page liver transplant

Liver Transplant for PSC

Everything you need to know from transplant assessment to coming home after your liver transplant.

front page leaflets

Download important PSC information

Leaflets on PSC and on bacterial cholangitis

Just diagnosed?

Ten tips on handling your diagnosis from people living with PSC

World without psc

Imagine a world without PSC?

That's what we're doing

#LetsBeatPSC

PSC News

Maxine at EURORDIS training

Medicine Development Training

June 16, 2019

This week, Maxine, PSC Support’s Programme Development Officer, has been extending her knowledge in this area with EURORDIS, the European patient organisation for rare diseases.

Organ donation scotland

Presumed Consent for Scotland

June 12, 2019

Another step towards presumed consent organ donation in Scotland.

Aspirin survey results

Cancer Prevention Survey Results

June 12, 2019

Survey results published: reducing the risk of cancer is important to people affected by PSC and they are interested in helping reduce the risks of PSC-related cancers.

Taking part in a clinical trial for PSC

Taking Part in Research – Patient Perspective

June 9, 2019

How do you get on a clinical trial for PSC? What’s involved? Gareth shares his experience.

Wonderful to be in a room with 1,500 + recipients of liver transplants @qehbham @QEHBCharity celebration of the 5000th transplant! Even more wonderful to meet @Drfattyliver and Mr Thamara Peters who was my surgeon a year ago yesterday! @NHSOrganDonor @PSCSupportUK @jfergus75

Excellent stuff Elena! Thank you! And the issues you highlight are not limited to liver transplant patients with PSC; they're part of a bigger issue for the liver disease community pre/post transplant @Drfattyliver @IanARowe

elena marcus@_elenamarcus

What an excellent day at the #PROMSLBU2019 Thanks for having me!
@MCPCRD @PSCSupportUK @PSCPartners

Results published: Reducing the risk of cancer is important to people with PSC and they are interested in helping reduce the risks of PSC-related cancers. Useful answers about likely interest in being on placebo arm and in longer term studies.
https://t.co/kr5Fk9T5zZ