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Working to end PSC

We're here to help anyone affected by PSC and to drive PSC research towards a cure

PSC Support is the leading patient organisation for anyone affected by primary sclerosing cholangitis (PSC)

PSC is a rare, immune-mediated liver disease that can affect anyone, at any age. PSC is complex and current evidence suggests that people with a genetic makeup may be susceptible to some sort of (as yet unknown) environmental trigger, which causes their immune system to effectively 'attack' the bile ducts.

Looking for a London Marathon place?

Do you want to run in the Virgin Money VIRTUAL London Marathon? We have five places available in the virtual race scheduled for 03 October 2021. Apply now.

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Patient stories

Stories written by you about living with PSC

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Take part in cutting edge research to help find a cure for PSC

COVID-19 and PSC

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Emergency cholangitis information

Our vision is to see a world without PSC

 

We provide patients and families with high-quality, accessible information and the support they need; we collaborate with healthcare providers to improve clinical care; we shape and fund critical research so that we can live in a world without PSC.

PSC News

Mental Health Awareness Week 2021

Mental Health Awareness Week 2021

10/05/2021

Hosted by the Mental Health Foundation, Mental Health Awareness Week will take place from 10 – 16 May 2021. The theme this year is ‘Nature’.

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New Research Studies

Opportunities to Take Part in new Studies to Help Advance Liver Disease Research

20/04/2021

Help advance research on liver disease by sharing your thoughts and experiences.

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PSC Alert Cards available to order again

We’re Posting our PSC Alert Cards Out to You Again

15/04/2021

Our handy wallet sized Alert Cards are available to order once again.

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Organ Transplantation Patient Information Website

NHSBT and BTS Organ Transplantation Patient Information Website

08/04/2021

NHS Blood & Transplant, in partnership with the British
Transplantation Society, have launched a new patient information website for organ transplantation.

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For my birthday this year I created a FB fundraiser for @PSCSupportUK and I'm eternally grateful for those who have already donated and its sparked some curious conversations as some of my friends weren't aware I live with this condition! πŸ’š

πŸŽ‰ Happy International Nurses Day πŸŽ‰. Proud to be supporting #livernurses. Thank you for all your hard work today and every day caring, supporting and advocating for people with and at risk of liver disease 😊

Join the conversation - How can we help health, sport and physical activity organisations to make it easier to be active for those of us with health conditions?

One for all those PSCers out there @PSCSupportUK @SHU_AWRC @annalowephysio @DrRobCopeland

https://easiertobeactive.clevertogether.com/welcome-and-register