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Working to end PSC

We're here to help anyone affected by PSC and to drive PSC research towards a cure

PSC Support is the leading organisation for anyone affected by primary sclerosing cholangitis (PSC)

PSC is a rare, immune-mediated liver disease that can affect anyone, at any age. PSC is complex and current evidence suggests that people with a genetic makeup may be susceptible to some sort of (as yet unknown) environmental trigger, which causes their immune system to effectively 'attack' the bile ducts.

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Emergency cholangitis information

Our vision is to see a world without PSC

 

We provide patients and families with high-quality, accessible information and the support they need; we collaborate with healthcare providers to improve clinical care; we shape and fund critical research so that we can live in a world without PSC.

PSC News

Pregnancy in PSC and post-liver transplant

Updated Information: Pregnancy in PSC and post-liver transplant

04/03/2021

Pregnancy in PSC and post-liver transplant Updated information We have a lot of young adults in our PSC community. We’re often asked whether PSC or having had a liver transplant should stop you starting a family. The answer is no, but you should talk to your PSC doctor or your transplant team beforehand in case a…

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Vaccine and immunosuppressants web

COVID Vaccines and the Immune System

04/03/2021

How do COVID vaccines affect people who are taking immunosuppressive medicines?

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Jenny Fundraiser

Jenny is Fundraising for PSC Support Through her Business

25/02/2021

Jenny is donating 10% of the purchase price of stationery, cards and craft kits to PSC Support until 07 March

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NHSBT Liver Transplant Update - Feb 2021

NHSBT Liver Transplant Update for Patients (February 2021)

24/02/2021

Important information for anyone on the liver transplant waiting list.

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Exciting to hear that our grant for research on Treg cells in PSC has led to in vivo models for liver regeneration. Thank you @WeiYu_Lu and Naruhiro Kimura! @BirminghamLiver @EASLnews @AASLDtweets @AutoImmuneLiver @LiverForum @PSCPartnersCa #livertwitter https://twitter.com/BirminghamLiver/status/1367840399109337090

Liver Immunology@BirminghamLiver

We welcome @WeiYu_Lu and Naruhiro Kimura at todays' research-in-progress meeting: exciting in vivo models for liver regeneration and PSC funded by @PSCPartners

We're often asked whether #PSC or having had a #LiverTransplant should stop you starting a family. The answer is no!

We've put together new and comprehensive information about this topic, with the help of @MichaelHenegha8 and @MussaratRahim.
👉https://buff.ly/3kKtcdc

@louistheroux @BBCTwo A Louis Theroux documentary series on living with a rare disease that has no/limited treatments, for example Primary Sclerosing Cholangitis (PSC) and organ transplantation would not only be very interesting but help raise much needed awareness 👌🏻 #leatsbeatpsc @PSCSupportUK 👍🏻