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Our vision is to see a world without PSC

 

PSC Support is the only UK patient organisation dedicated to improving the lives of people affected by primary sclerosing cholangitis (PSC)

We provide patients and families with high-quality, accessible information and the support they need; we collaborate with healthcare providers to improve clinical care; we shape and fund critical research so that we can live in a world without PSC.

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Medical Research

PSC Support is a member of the Association of Medical Research Charities (AMRC). AMRC membership demonstrates that PSC Support delivers high-quality research and is an indicator of the excellent work we do in research governance and standards.

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Patient stories

Stories written by you about living with PSC

Find clinical trials

Take part in cutting edge research to help find a cure for PSC

COVID-19 and PSC

Get the latest information for you and your doctors

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You don't need to face PSC alone

Get the PSC Alert Card

Emergency cholangitis information

PSC News

What can we do better

What Can We Do Better?

29/06/2022

Tell us your views on how the charity supports you and how we can improve.

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Martine Walmsley

Thank you Martine Walmsley

29/06/2022

Martine Walmsley steps down as Chair of Trustees of PSC Support after 15 years of volunteering for the charity.

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Impact of itch Surey POSTER

Itch Survey Results

28/06/2022

Results of the PSC multinational itch survey

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Tim Waterson Chair of Trustees

New Chair of Trustees

16/06/2022

PSC Support announces Tim Waterson as new Chair of Trustees of the charity.

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What can we do better? Speak to our CEO

PSC Support has a new CEO, Paula Hanford, who would like to speak people affected by PSC to understand how the charity can improve.

If you can spare 30-60 mins please email Paula at paula@pscsupport.org.uk or message/call 07514 235456.

If you need additional support, please look at #AMMF’s website where we have links to other UK organisations and web-based resources for patients, families and caregivers that may be helpful.
https://ammf.org.uk/helpful-links/
#cholangiocarcinoma

PSC patient groups from around shared this survey about itch - 91% of respondents had experienced itch due to PSC. A third were itching at the time of the survey - these results highlight the huge unmet need for people with PSC based on only one of their many daily symptoms.