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Our vision is to see a world without PSC


PSC Support is the only UK patient organisation dedicated to improving the lives of people affected by primary sclerosing cholangitis (PSC)

We provide patients and families with high-quality, accessible information and the support they need; we collaborate with healthcare providers to improve clinical care; we shape and fund critical research so that we can live in a world without PSC.

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Medical Research

PSC Support is a member of the Association of Medical Research Charities (AMRC). AMRC membership demonstrates that PSC Support delivers high-quality research and is an indicator of the excellent work we do in research governance and standards.

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Patient stories

Stories written by you about living with PSC

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Take part in cutting edge research to help find a cure for PSC

COVID-19 and PSC

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PSC News

Paula Hanford CEO

Meet Our Chief Executive


We are delighted to announce that Paula Hanford has joined PSC Support as Chief Executive.

Itching in PSC Study

Itching in PSC


The Queen Elizabeth Hospital Birmingham is conducting a study on itch in PSC

AMRC membership

Member of the Association of Medical Research Charities


PSC Support joins the Association of Medical Research Charities

Ask the Expert Instagram 23 May22 web

Ask The Expert 23 May 2022


Join us for Part 2 of Ask the Expert with Dr Quraishi and Dr Trivedi on 23 May


The #EASLJC discussing IgG4-related cholangitis is now demand!
Read the paper 👉
Watch the discussion👉

#Livertwitter #PSC #IRC
@EASLnews @JHepatology @wong_yujun @SaSi_Lens @CholestasisDoc @PSCSupportUK @BASLEdu

One of the final edits from a photoshoot I took part in a few months back - as much as I hate my photo being taken, I think this came out well! #photoshoot #IBD #ibdsuperheroes #stoma #ileostomy #typeonediabetes #ulcerativecolitis #pscliverdisease

Today marks the 2nd anniversary of the #OrganDonation opt out system coming into effect in England, known as ‘Max and Keira’s Law’. You still have a choice if you want to be an organ donor or not when you die and families will always be involved.

To celebrate #WorldIBDDay, here is some fantastic artwork by Harriet Banks, a student in my group @sangerinstitute, showing folks in our wet lab processing gut biopsies, kindly donated by patients, for #scRNAseq. We use the data to gain novel insights into the biology of IBD.