Working to end PSC

We're here to help anyone affected by PSC and to drive PSC research towards a cure

PSC Support is the leading UK-based organisation for anyone affected by primary sclerosing cholangitis (PSC). We’re here to help, whether you are a patient, family member, healthcare provider or researcher.

 

PSC is a rare, immune-mediated liver disease that can affect anyone, at any age. PSC is complex and current evidence suggests that people with a genetic makeup may be susceptible to some sort of (as yet unknown) environmental trigger, which causes their immune system to effectively 'attack' the bile ducts.

 

PSC Support is working to improve the lives of people affected by PSC by providing support and information, campaigning to improve the care we receive, and funding critical research to find effective PSC treatments.

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Liver Transplant for PSC

Everything you need to know from transplant assessment to coming home after your liver transplant.

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Download important PSC information

Leaflets on PSC and on bacterial cholangitis

Just diagnosed?

Ten tips on handling your diagnosis from people living with PSC

World without psc

Imagine a world without PSC?

That's what we're doing

#LetsBeatPSC

PSC News

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Yellow Card Scheme

July 22, 2019

How to report side effects of medicines and how to create a ‘watch list’ of medications for which you can receive news and alerts.

NHSBT transplant activity 18-19 rates consent

Highest Ever Number of Organ Donors Last Year

July 21, 2019

The annual Organ Donation and Transplantation Activity Report from NHS Blood and Transplant reports was published his month for the year 2018/19.

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Lancet Commission Survey

July 10, 2019

Help improve standards of care for rare liver disease patients and attitudes towards liver disease.

Birmingham Information Day June 2019

July 1, 2019

PSC Support held their 2019 Birmingham Information Day on the 22nd June at the Queen Elizabeth Hospital.

Lots going on therapeutically in PSC so am pleased despite bad weather that I made an investigator meeting for a trial opening later this year. @PSCSupportUK @PSCPartners more trial data will emerge 2020 and 2021 @EASLedu @AASLDtweets we hope! Focusing on beating the 4Cs of PSC.

Joint @UHN @SinaiHealthTO @SickKidsNews education rounds on PSC-IBD: a city with alot of expertise in PSC-IBD still eager to learn from each other from kids to adults.

#EASL opens call for new Scientific Committee member https://t.co/2LKlaYk2zA
European National Associations are invited to submit nominations but EASL members living in Europe can also self-nominate.

Deadline: 16 Sept. 2019