Working to end PSC

We're here to help anyone affected by PSC and to drive PSC research towards a cure

PSC Support is the leading organisation for anyone affected by primary sclerosing cholangitis (PSC)

PSC is a rare, immune-mediated liver disease that can affect anyone, at any age. PSC is complex and current evidence suggests that people with a genetic makeup may be susceptible to some sort of (as yet unknown) environmental trigger, which causes their immune system to effectively 'attack' the bile ducts.

Our vision is to see a world without PSC

 

We provide patients and families with high-quality, accessible information and the support they need; we collaborate with healthcare providers to improve clinical care; we shape and fund critical research so that we can live in a world without PSC.

During this time, support for our work is more important than ever.

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COVID-19

Latest information for healthcare professionals and patients about COVID-19 and PSC

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Get a PSC Alert Card

Emergency cholangitis information for you and your doctors

Find out about PSC

What exactly is PSC? We've got the basics covered #PSCFacts

Take control

Understand your medical care and what to expect

Live your life

Tips and information for living better with PSC

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Receive regular info, tips and news on all things PSC

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You don't need to face PSC alone. #PSCSupport

PSC News

PSC Wellbeing Study

The PSC Wellbeing Study Update

July 7, 2020

Tips on living with PSC for patients and tips for PSC doctors

Ask the Expert Dr Palak Trivedi 2

Ask the Expert 5 – Dr Palak Trivedi is back!

June 26, 2020

UPDATED WITH VIDEO! Dr Palak Trivedi answering questions in our Ask the Expert Q&A session this week.

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COVID-19 Survey

June 26, 2020

Please can you answer a few questions about COVID-19 so we can better evidence the risks to patients?

Crucial to understand the psychological well-being effects of a diagnosis and how to work with all those involved in supporting individuals 👍
Listen, Learn, Educate
@veeranieri @kathymmckay @PSCSupportUK
https://t.co/e2s923QyIL

Loved working with @PSCSupportUK on this study. Highlights how important the inclusion of lived experience is in studies like this https://t.co/MXG6uwVDnF

Fellow Researchers, if you’re worried about how to do qualitative work whilst keeping everyone safe during the pandemic, try asynchronous virtual focus groups. Here’s how it worked for us: https://t.co/y8ofa3J7Ip @PSCSupportUK @kathymmckay @dougton

Behind every COVID-19 statistic, there is a person. Ahmed, who had a liver transplant for #PSC, was one of the first patients to receive convalescent plasma to fight #COVID19. He's urging others to donate. https://t.co/gsajx2ICTP @NHSOrganDonor @UHBResearch @qehbham