Working to end PSC

We're here to help anyone affected by PSC and to drive PSC research towards a cure

PSC Support is the leading patient organisation for anyone affected by primary sclerosing cholangitis (PSC)

PSC is a rare, immune-mediated liver disease that can affect anyone, at any age. PSC is complex and current evidence suggests that people with a genetic makeup may be susceptible to some sort of (as yet unknown) environmental trigger, which causes their immune system to effectively 'attack' the bile ducts.

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Do you want to run in the Virgin Money VIRTUAL London Marathon? We have five places available in the virtual race scheduled for 03 October 2021. Apply now.

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Our vision is to see a world without PSC

We provide patients and families with high-quality, accessible information and the support they need; we collaborate with healthcare providers to improve clinical care; we shape and fund critical research so that we can live in a world without PSC.

PSC News

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Opportunities to Take Part in new Studies to Help Advance Liver Disease Research

20/04/2021

Help advance research on liver disease by sharing your thoughts and experiences.

PSC Alert Cards available to order again

We’re Posting our PSC Alert Cards Out to You Again

15/04/2021

Our handy wallet sized Alert Cards are available to order once again.

NHSBT and BTS Organ Transplantation Patient Information Website

08/04/2021

NHS Blood & Transplant, in partnership with the British
Transplantation Society, have launched a new patient information website for organ transplantation.

New Advice on COVID-19 Vaccine AstraZeneca

07/04/2021

MHRA issues new advice, concluding a possible link between COVID-19 Vaccine AstraZeneca and extremely rare, unlikely to occur blood clots.

PSC SupportFollow

PSC Support @PSCSupportUK·

21 Apr

Researchers are looking for people who have been diagnosed with PSC to participate in an online survey. The purpose of this study is to understand the experience of patients with liver disease, including symptoms and impact on quality of life 👉 https://buff.ly/3dBZMwd

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PSC Support @PSCSupportUK·

20 Apr

On brand 👌 Seriously, we hope everything goes to plan Gareth - we are thinking of you. A transplant assessment is a major milestone for anyone with PSC 🤗

Gareth Weeks@GarethWeeks

Liver transplant assessment day at the Royal Infirmary of Edinburgh #psc #organdonation #pscsupport #livertransplantassessment #livertransplant

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PSC Support @PSCSupportUK·

20 Apr

Help advance #liver #research! If you are living with #itching (#pruritus) caused by PSC, you may be eligible to help researchers understand the lived experience of this condition. Your voice is important! Find out more here: 'Understanding itch in PSC' 👉https://buff.ly/3xbl8br

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james ferguson @jfergus75·

19 Apr

60 services now registered #IQILS
This is amazing news for patients with liver disease @RCPLondon @LiverTrust

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