The impact of having PSC can affect your quality of life, future plans and life goals 35,123. The uncertainty associated with the unpredictable nature of PSC can understandably lead to feelings of anxiety and low mood.
Do I need formal psychological support?
Many people manage perfectly well without formal psychological support but there may be times when you may need to speak to a professional.
When to get help
Psychological support for patients and carers can be helpful at all stages of the illness journey. Seek help if:
- you are finding it difficult to cope with your thoughts and feelings
- your thoughts and feelings are having a negative impact on your day to day life e.g. you are so anxious you can’t concentrate
- your thoughts and feelings are stopping you from engaging with the management of your PSC
How to get help
Speak to your GP about accessing psychological support for dealing with PSC (which is a long-term condition). There may be a wait, but they will be able to refer you for this service.
Your liver unit: your liver unit may have access to a psychology/counselling team, although at the moment this tends to be restricted to liver transplant patients only.
PSC Support Helpline: 01235 25 35 45
The PSC Support Facebook Group is a wonderful source of emotional support and information about PSC.
Other Non-Profit Organisations
Every Mind Matters provides simple tips and advice to start taking better care of your mental health.
The charity, Anxiety UK, has resources and support available for people experiencing anxiety relating to COVID-19.
MIND provides advice and support to empower anyone experiencing a mental health problem.
If you are still struggling after several weeks and it is affecting your daily life, please contact NHS 111 online. If you have no internet access, you should call NHS 111.
Seeking help privately can be expensive and it is important to see someone who is appropriately qualified. The British Association for Counselling and Psychotherapy (BACP) website has information on how to find a therapist and a therapist directory. You can also find register of Accredited BABCP Cognitive Behavioural Therapists on the British Association for Behavioural and Cognitive Psychotherapists (BABCP) website, has a register of accredited CBT therapists.
How to live positively with PSC
It is possible to live positively with PSC! Check out our tips and strategies for living a happy and healthy life with PSC.