Plain English Summaries
Summaries of PSC research
We've collated our commentary and lay summaries of research below.
European experts have made recommendations on the care of liver disease during the COVID-19 pandemic.
Update on preparing for your next colonoscopy with some new tips from patients.
Our Report on PSC research from the International Liver Congress 2020
Are the mechanisms that drive inflammation in the bowel in people with PSC different to that seen in people with UC alone? Dr Nabil Quraishi
A new study has looked at the health records of people with IBD to understand what happens to them if they develop PSC.
On 21 July, research about alkaline phosphatase (ALP) and the enhanced liver fibrosis (ELF) score and PSC was published.
Patient Insights Report – PSC Clinical Trials reports on attitudes to PSC research and study design and makes recommendations to improve recruitment.
The VITTAL Study investigated the use of a new technology called NMP to see if it allowed more transplants to safely take place.
The 6Cs that all PSC doctors should be thinking about:
Covert, Cholangitis, Cirrhosis, Colitis, Cancer, CURE
Care of liver disease patients during COVID-19 – summary of guidance for healthcare professionals (written by PSC Support and EASL).
Researchers have today published an article based on learning from research funded by PSC Support called the PSC Wellbeing Project.
New research from the University of Birmingham reveals results of clinical trial about machine perfusion technology.
We are delighted to share our first insights following the PSC Support survey we launched last year to help shape PSC research design.
Patients with advanced liver disease and transplant recipients require specific care during COVID-19
We’re delighted to announce that PSC Support has awarded a grant to Dr Elizabeth Goode and Dr Simon Rushbrook to develop a blood test to diagnose PSC.
The UK-PSC Guidelines for managing PSC were officially launched last week. Our summary of the recommendations and what they mean for care.
PSC Support announces new funding for research to track 600 PSC patients over 5 years. The research will study patients in the UK-PSC biobank.
In 2016 PSC Support started talking to experts to develop the a disease-specific quality of life measure for PSC. Latest update on progress.
After identifying that there was a significant impact on emotional wellbeing when living with PSC, yet a lack of psychological support for both patients and their loved ones, PSC Support commissioned research to address this situation. Publication in BMJ.
PSC Support is funding important research to allow for early detection of bile duct cancer and recurrent PSC.