Co-Chairs: John Crookenden, ALTA and Alison Taylor (Children's Liver Disease Foundation)
The Liver Patients' Transplant Consortium (LPTC) is a partnership of the UK's liver patient support groups and charities, working together on transplant issues important to patients and their families. LPTC is working closely with NHS Blood and Transplant (NHSBT) to ensure that the patients' perspective is heard and considered.
The role of the LPTC is to:
- promote and support the involvement of the public and patients in the provision and delivery of liver transplant services and organ allocation;
- obtain the views of patients, carers and their families in relation to their needs for, and their experiences of, liver transplant services and organ allocation;
- make reports and recommendations about how liver transplant services and organ allocation could or ought to be improved, to persons responsible for commissioning, providing, managing or scrutinising such services, and to NHS Blood and Transplant (NHSBT).
Together, the LPTC will:
- promote the values of public and patient involvement in decisions affecting the commissioning and delivery of liver transplant services, organ allocation and related services.
- respect the confidentiality of individuals.
- evaluate the impact of involvement.
In order to achieve this, we will:
- conduct the highest standards of public and patient involvement.
- provide support to help facilitate the sharing of best practice involvement amongst the partners.
- champion the use of patient experience and public voice in the commissioning, governance and evaluation of services.
2013 - 2015 Chairs: Martine Walmsley and John Crookenden
2015 - 2017 Chairs: Andrew Langford and John Crookenden
2017 - date Chairs: Alison Taylor and John Crookenden