New clinical guidelines on the diagnosis and management of PSC have been published. At the time of writing, these are the most comprehensive, up-to-date guidelines in the world and have been developed with patients.
The PSC Support website is a valuable source of high quality PSC information and what to expect in clinical care. We've incorporated the new guidelines into the information about PSC care throughout the website, with a summary of the main international PSC guidelines here.
Martine Walmsley, PSC Support Chair of Trustees, who represented people with PSC in the guideline, said, 'This BSG/UK-PSC guideline is important because there is a focus on referring the patient to specialist care earlier rather than later. When the disease becomes symptomatic, evolving or complex, expert multidisciplinary assessment is needed.'
'Critically too, these guidelines highlight the fact that if an individual is eligible to take part in a clinical trial, then they should be given that opportunity. This might mean referring that patient to a different hospital - one that is conducting clinical trials.'
'Personally, I'd like to see these guidelines go a lot further but there is a real dearth of evidence to support treatment and care options for PSC. PSC Support is working hard to bridge that gap and help develop the necessary evidence to justify and ultimately implement the care we need.'