Liver transplantation for PSC

Your guide to liver transplantation

Not everyone with PSC will need to have a liver transplant.

However, some people do, so we've created this comprehensive guide to answer all your questions relating to transplantation and PSC.

Your Guide to Liver Transplantation for PSC

Before a Transplant

The Transplant

After Transplant

Liver transplant and organ donation news

My Life, My Heart Documentary

18 Feb 2020

CBBC have produced a documentary called My Life, My Heart, which follows the story of Jack, now aged 13, while he waited for and eventually received a heart transplant.

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Organ Donation Law is Changing. Pass It On.

10 Jan 2020

In the lead up to the change in law, NHS Blood and Transplant is urging families across England to talk about their organ donation decision, with the campaign message ‘Pass it on’.

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Calling Liver Transplant Patients!

17 Dec 2019

If you have had a liver transplant, would you like to join our focus group to help a researcher improve outcomes for liver transplant patients?

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NHS Organ Donor Register Reaches 25-Year Milestone

25 Oct 2019

As NHS Organ Donor Register reaches its 25th anniversary, there are now nearly 25 million people on the NHS Organ Donor Register and more than 20,000 lives have potentially been saved or transformed thanks to its introduction.

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BBC programme on athletes in the Transplant Games

05 Sep 2019

Watch BBC programme about this year’s athletes competing in the World Transplant Games. Available until 29 Sep 2019.

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Liver Transplant Policy

23 Jul 2019

Ensuring equitable access to donor organs for people on the liver transplant waiting list.

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Highest Ever Number of Organ Donors Last Year

21 Jul 2019

The annual Organ Donation and Transplantation Activity Report from NHS Blood and Transplant reports was published his month for the year 2018/19.

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Liver Patients’ Transplant Consortium Meeting

17 Jul 2019

Liver patient groups met today to discuss liver transplant related issues and developments.

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Maxine Presents the Patient Perspective to Liver Transplant Nurses

12 Jul 2019

Maxine was recently invited to talk at the South West Liver Nurses study day.

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Presumed Consent for Scotland

12 Jun 2019

Another step towards presumed consent organ donation in Scotland.

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Living with PSC: A Patient’s Perspective VIDEO

21 May 2019

Maxine gives an account of her PSC diagnosis, being listed for liver transplant and life after her liver transplant for PSC.

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Opt-Out Organ Donation System for Ireland

03 May 2019

Proposals approved to publish the draft legislation for an opt-out organ donation system in Ireland.

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Opt-out organ donation system approved

26 Feb 2019

Organ donation law is changing in Scotland and England.

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Help to get active after transplant

22 Feb 2019

A new online programme from the World Transplant Games Federation was launched today to improve fitness, nutrition, wellbeing and quality of life.

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UK liver patient community is pulling together

05 Feb 2019

The Liver Patients’ Transplant Consortium (LPTC) met today for the benefit of liver transplant patients.

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Deemed consent one step closer

01 Feb 2019

An opt-out system for organ donation could soon become law.

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Opt Out System for Organ and Tissue Donation in England

05 Aug 2018

Consultation response and Government plans to introduce a new opt out system for organ donation in England from spring 2020.

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National Liver Offering Scheme Introduced

19 Mar 2018

A new system has been introduced to allocate livers to patients on the liver transplant waiting list.

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New Liver Offering Scheme Proposed

11 Mar 2015

PSC Support response to proposals.

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