Skip to content

Routine care and monitoring

How your doctor will manage your condition using current clinical practice guidelines

Routine checks in PSC (Dr James Ferguson)

PSC is a complex condition and ideally, your care should be managed by someone with an interest in and experience of PSC. While there is no curative treatment, your doctor can monitor your condition and help manage your symptoms using current clinical practice guidelines for cholestatic liver diseases.

Because of the serious nature of the complications of PSC, you should remain under lifelong follow up with your PSC doctor (BSG/UK-PSC Guidelines Recommendation 4 58).

If you start to get more symptoms and your PSC is evolving or becoming complex, you should be referred for expert multi-disciplinary assessment. Patients with early, stable disease can be managed in general clinics (BSG/UK-PSC Guidelines Recommendation 16 58).

Your doctor will also discuss with you how he or she will manage your routine PSC healthcare and together you will form a PSC care plan and communicate this to your GP. Your GP should not be expected to know everything about PSC, and therefore it is helpful when your Hepatology/Gastroenterology consultant shares a clear picture of how you will be monitored and what role your GP will play.

Your PSC doctor will also give you information about what to do about concerns and how to contact the clinic.

Routine Care and Monitoring

Once PSC is diagnosed, your doctor will discuss with you and assess the following:

Cancer risk

Osteoporosis assessment (bone density)

Symptoms (such as itch, pain and fatigue)

Malabsorption of fat-soluble vitamins (in the case of more advanced PSC)

IBD screening

Clinical trials eligibility

Liver and bile ducts (extent of damage)

Related News

What Should You Expect Routine Care To Look Like?

29 Dec 2020

What does standard routine care look like for PSC patients? The PSC guidelines should be followed at the very minimum.

IQILS Introduction

02 Aug 2020

Introduction to IQILS: Training opportunity for liver services

The 6 Cs of Primary Sclerosing Cholangitis

18 Jul 2020

The 6Cs that all PSC doctors should be thinking about:
Covert, Cholangitis, Cirrhosis, Colitis, Cancer, CURE

COVID-19 Patient Organisation Toolkit

15 Jul 2020

A communications toolkit for rare liver patient organisations.

Care of Patients with Liver Disease during the COVID-19 Pandemic

09 Jul 2020

Care of liver disease patients during COVID-19 – summary of guidance for healthcare professionals (written by PSC Support and EASL).

COVID 19 Toolkit for Liver Patients

07 May 2020

Print this self management toolkit to help you keep a record of your health during COVID-19 and get the most out of your appointments.

Questions For Your Liver Doctor

06 May 2020

If your mind goes blank when you see your doctor, read on. Question prompts to use in your appointments.

How is COVID-19 affecting you?

24 Apr 2020

COVID-19 is affecting your home, work and social life as well as your healthcare. Share your tips and tell us your problems in these challenging times.

European Healthcare Survey

07 Apr 2020

Please take 5 minutes to help improve healthcare for rare liver disease across Europe.

Liver Transplant Guidelines

29 Feb 2020

Read new transplant guidelines summary and how we’re helping to improve liver transplant services.

Make a difference

Help our work and
PSC research

Friend or family?

12 things you you need to know about PSC

What we do

Improving the lives of people affected by PSC