What we do

PSC Support is the leading patient-led organisation for people with PSC

PSC Support is the voice for PSC patients in research and drug development.

We represent PSC patients internationally to evidence and articulate their unmet needs and research priorities. PSC Support not only funds vital PSC research, but we also work alongside researchers to ensure patient needs are at the centre of their studies. PSC Support has also contributed to a number of published research papers.

PSC Support is the voice for PSC patients in improving clinical care and liver services.

PSC Support is actively involved in initiatives to raise standards and quality of care in hospitals, and has helped develop clinical care guidelines for managing PSC and liver disease.

PSC Support is the definitive source of information about PSC for patients and healthcare professionals.

Our website is a trusted and reliable source of quality PSC information, reviewed in detail by leading PSC authorities to ensure it is accurate, up-to-date and aligned with best practice and guidelines.

PSC Support is pioneering wellbeing for PSC patients.

PSC Support was the first patient organisation to evidence and represent the unmet needs of those affected by PSC and bridge the gap between traditional scientific knowledge of PSC and real world PSC, as experienced by patients. PSC Support commissions and funds research to address quality of life and wellbeing for PSC patients and the impact of PSC on families.

PSC Support is here to help

As well as the information on this website, we offer a helpline and email support service, and an active Facebook group so you can ask questions or access support and information whenever you need it.

Get involved

Help us work towards a cure for PSC. #LetsBeatPSC

Get a PSC Alert Card

Emergency cholangitis information for you and your doctors.

Make a difference

Help us fund PSC research and support people with PSC