People with PSC often have other diseases and might therefore need a number of prescriptions. You are responsible for ensuring that you understand why you are taking the medication prescribed to you. If you are unsure, ask your doctor or nurse to explain. You should also have your prescriptions reviewed on a regular basis by your GP or pharmacist.
Ordering Repeat Prescriptions
Order your medications well in advance – some GP practices take 24-48 hours to turn around prescription requests. Many GPs now offer online services, which allow you to order repeat prescriptions without having to phone or visit your surgery.
Paying for Prescriptions
Prescription prepayment certificate
Scotland, Wales and Northern Ireland provide free prescriptions to everyone. In England, prescription charges must be paid (unless you have an exempt condition). If you pay for your prescriptions, check with your chemist if you are entitled to any benefits or consider a prescription prepayment certificate (PPC). A PPC is like a season ticket for medicines as it covers all of your NHS prescriptions no matter how many items you need. A PPC saves you money if you buy more than 12 prescription medicines per year.
Prescription Charges Coalition
Like others with multiple long-term conditions, people with PSC must pay for their prescriptions, often needing to buy multiple medications at once. Prescription charges impose costs on people with chronic conditions for the medicine that keeps them well or even alive, not to mention the additional costs if their illnesses flare-up. As a member of the Prescription Charges Coalition, PSC Support campaigns to end unfair prescription charges for people with long-term medical conditions like PSC and IBD.
News about Medicines and Treatments
Joanna: Cant Afford My Medication
Thousands with long-term conditions like PSC and IBD have to pay for their prescriptions, while those with conditions like Type-1 diabetes don’t pay a penny. Why?
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Electronic Prescriptions to be Introduced Nationally from November 2019
NHS to scrap paper prescriptions next month under a plan to save £300m by 2021.
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PSC Support is working with the UK Regulatory Authority for Medicine Development
PSC Support is a member of the Patient Group Consultative Forum (PGCF) to bring the PSC patient voice to the work of the MHRA.
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Yellow Card Scheme
How to report side effects of medicines and how to create a ‘watch list’ of medications for which you can receive news and alerts.
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Medicine Development Training
This week, Maxine, PSC Support’s Programme Development Officer, has been extending her knowledge in this area with EURORDIS, the European patient organisation for rare diseases.
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Your Medicines Supply After the EU Exit
What to expect in the event of a no-deal EU Exit and and what to do now.
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Research of medicine for PSC
PSC Support represents patients at EMA meeting on development of medicines for PSC
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