We are delighted to share our first insights following the PSC Support survey we launched last year to help shape PSC research design. Thank you to everyone who took the time to give answers. Your responses were (and continue to be) very helpful in our work with researchers to help improve how research trials are designed.
We shared the responses to the individual questions immediately after the survey closed, and now are working on the analysis and full report, which we've split into two parts, the first of which is available now:
- Part 1 is about health.
- Part 2 is about attitudes to research and study design and is coming soon.
Did you know...
34% of us reported having brain fog in the previous week?