Birmingham 2019 PSC Information Day

Presentations

We're adding more presentation videos from our Information Day at the Queen Elizabeth Hospital, Birmingham (June 2019) as we publish them. You can view highlights of the day here.

PSC Essentials - Dr James Ferguson

An ideal introduction to PSC, especially if you or someone you know has just been diagnosed.

This video covers:

  • What is bile and why is it important?
  • Bile duct anatomy
  • Symptoms: Pain - Itching - Tiredness - Jaundice - Cirrhosis
  • What your doctor looks for in clinic (routine tests)

Tests and Procedures Explained - Dr Palak Trivedi

Dr Trivedi talks about tests and procedures in PSC and why they're so important.

This video covers:

  • What tests do we routinely do and why?
  • Liver blood tests (ALT, AST, ALP, gGT, Bilirubin, albumin, INR, full blood count, ELF test, immunoglobulins)
  • Imaging (liver ultrasound, FibroScan, MRI scan)
  • Invasive tests (endoscopy, ERCP, colonoscopy, liver biopsy)
  • Blood tests when you have acute cholangitis (bacterial cholangitis)?

My PSC Transplant Experience - Gary Taylor

Gary, a PSC patient, talks about his experience of living with PSC and his liver transplant.

This video covers:

  • My story - the last 11 years
  • The lead up to the transplant - Assessment day
  • Getting listed - 'The call'- Transplant day
  • Recovery -Today

Liver Transplantation and PSC - Dr James Ferguson

An overview of liver transplantation for PSC and the current UK allocation/offering arrangements.

This video covers:

  • How common is liver transplant for PSC in the UK?
  • What is the process for getting on the liver transplant waiting list
  • What does the hospital do for the patient while on the waiting list to keep them as fit as possible?
  • Recurrent PSC after transplantation (especially choices made about IBD surgery)
  • National Liver Offering Scheme
  • Living Donor Liver Transplant
  • Cholangiocarcinoma/PSC and liver transplant
  • Niggles and pains after liver transplantation

Natural History of PSC - Dr Palak Trivedi

Dr Trivedi looks at evidence gained from studying the natural history of PSC to unravel the answers to the most difficult questions about PSC.

This video covers:

  • What will happen to me?
  • Understanding the natural history of PSC
  • Who needs a transplant?
  • How likely am I get bile duct cancer or need a liver transplant?
  • PSC and AIH ‘overlap’ - small duct PSC - classical PSC
  • Does age affect need for transplant?
  • IBD and PSC Bowel surgery and PSC: pouch or ileostomy?
  • Bowel surgery and transplant?

Understanding the Links Between PSC and IBD - Dr Palak Trivedi

Dr Trivedi talks about what research tells us about the links between PSC and inflammatory bowel disease (IBD).

This video covers:

  • Gut bacteria may be distinct in PSC
  • Faecal Microbiota Transplantation (FMT) for PSC
  • The PSC liver exhibits a 'gut postal code' - immune cells and PSC

Non-invasive Cancer Detection - Dr Palak Trivedi

Dr Trivedi talks about emerging non-invasive cancer detection techniques.

This video covers:

  • Using urine to detect bile duct cancer
  • Using the scent of stools to detect colon cancer

PSC Research - Dr Palak Trivedi

Dr Trivedi looks at the latest clinical trials for PSC and why they're so important.

This video covers:

  • Therapy for PSC: What can be done?
  • What is a clinical trial?
  • What is a placebo?
  • MERLIN clinical trial
  • NorUrso Clinical Trial
  • Questions about UDCA (Urso)
  • There will be no cure for PSC without clinical trials

Liver transplant for PSC

Everything you need to know about having a liver transplant

Take control

Understand your medical care and what to expect

What is PSC?

What exactly is PSC? We've got the basics covered #PSCFacts