How much support will I get post-transplant?
During the first few days and weeks in hospital you will get a lot of support from your medical team. This includes the surgeons, nurses, doctors, dieticians, transplant coordinators, social workers and physiotherapy staff. If they feel you need additional support or equipment to assist you when you first get home, this will be arranged prior to discharge and stay in place for as long as you need it.
You will be seen regularly in a transplant clinic after being discharged from hospital but it is important for you to know who to contact should you have any questions or worries about your health once you are home.
How can I manage my emotions before and after transplant?
Having a transplant can be an overwhelming experience and there is no right or wrong way of dealing with it. For some information about managing emotions and being positive, see Living positively with PSC.
Where can I find emotional support?
Most transplant centres have regular patient support group meetings for liver patients, often led by volunteers. The PSC Support Facebook group offers a way of connecting with others without even needing to leave home.
PSC Support operates a dedicated helpline (01235 25 35 45).
If you feel you need more formal support, speak to your doctor about accessing psychological support. Once you have been referred to a psychological service, you will be seen as soon as possible depending on the resources available in your area. If you find your problems are getting worse or are concerned about your wait you should speak to your GP.