We're working hard to help researchers find an effective treatment for PSC as soon as possible, and to help improve healthcare services for people with PSC.
We occasionally run surveys to find out your views on various topics, from your experiences of PSC, your healthcare to your views and appetite for research. Why? We MUST back up the claims we make about the needs of people with PSC with evidence. Your views are helping us do that. Together, we can make a difference.
Keep an eye on this page for new surveys and polls. 5 minutes spent on a survey now could mean a lifetime of difference in the future.
Thank you.
Top TenPSC Issues
A quick survey to find out the top ten issues for people affected by PSC.
Open to: everyone!
Pregnancy and PSC care
Survey about pregnancy care for people with PSC.
Open to: women of child-bearing age who have PSC
Patient Insights Report
Published May 2020
Part 1 - PSC Healthcare
Patient Insights Report
Published Aug 2020
Part 2 - PSC Clinical Trials
Clinical Trial to Test Bezafibrate in PSC
Full report coming soon
Studies to Modify Gut Bacteria in PSC?
Full report coming soon
Research and Treatment Surveys
March 2016